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Morgellons 2008 Conference | Charles E. Holman Morgellons Disease Foundation

1st Annual Scientific/Medical Conference on Morgellons Disease

"Searching for the UnCommon Thread"

DATE: March 29, 2008

TIME: 8:00 AM - 5:00 PM

LOCATION: Westoak Woods Baptist Church Conference Room 2900 Slaughter Lane Austin, Texas

Conference DVD's Available Here

HOW TO REGISTER

A completed registration form is required to assure adequate seating and accommodations


SPONSOR

This event is being sponsored by the Charles E. Holman Foundation/New Morgellons Order, a non-profit organization with IRS 501 (c) (3) status. Our all volunteer staff is dedicated to fundraising for scientific research and medical education, raising public awareness, and providing support for those who suffer with this unexplained illness.

WHO MAY ATTEND

Although much of the lecture content will be geared toward medical professionals and scientists, we encourage patients and supporters to attend as well. Our goal is an informative, educational and inspiring event that will be beneficial to all!


SPEAKERS INCLUDE

Ginger Savely, DNP

San Francisco, CA

Completing her Doctorate in Nursing Practice at Case Western University (March 16, 2009). Having seen over 300 Morgellons patients in her practice, Dr. Savely's experience has become world renown.

Topic: "A Descriptive Analysis of 122 Patients with Visualized Subcutaneous Fibers"

Summary: Ms. Ginger Savely spoke of her experiences treating Morgellons. She noted the common history and physical findings of Morgellons in many Lyme positive patients coming to her for care. As one of the few clinicians who believes in the reality of Morgellons and has published about the disease, she has attracted a large number of Morgellons patients to her practice. Indeed, she likely has seen and treated more patients with Morgellons than any other clinical health care provider. Ms. Savely shared a number of her observations about the disease and her treatment experiences, emphasizing each patient is unique and may require treatment tailored to that individual’s needs.






Raphael B. Stricker, M.D.

San Francisco, CA

Sub-specialty training in internal medicine, hematology, and immunology. Board of Directors ILADS, International Lyme and Associated Diseases Society. Board of Directors CALDA, California Lyme Disease Association

Topic: "The Mystery of Morgellons"

Summary: Dr. Raphael Stricker reviewed a brief history of his involvement with Morgellons and compared the situation to the early years of the AIDS epidemic. He reviewed some of the clinical aspects of the disease and his belief that Agrobacterium species may be involved in some manner in the disease process. Thus far, research by Dr. Vitaly Citovski, Stony Brook Research Institute, has found PCR evidence of Agrobacterium in tissue samples of all Morgellons patients tested. No evidence of the presence of Agrobacterium has been found in the control tissue samples. I believe it should be noted that Agrobacterium has the ability to insert its DNA into a variety of plant species, and has recently been noted to be the only known species of microbe capable of infiltration of the DNA of not only plant species, but animal species as well.






Randy S. Wymore, Ph.D.

Tulsa, OK

Director, Center for the Investigation of Morgellons Disease; Associate Professor of Pharmacology & Physiology. Oklahoma State University, Center for Health Sciences

Topic: "Research Update"

Summary: Dr. Randy Wymore, research scientist with Oklahoma State University Center for Health Sciences, Tulsa, presented an overview of his interest in the disease and some of the facts discovered in his research efforts. As the fibers seemingly produced in the body of Morgellons patients seem unique, much of Dr. Wymore’s research has focused on them. To date, exactly what the fibers represent and their role in the disease process is unknown. What is known is mostly what the fibers are NOT. They are not of textile origin, as has been assumed in the past. Not only did a forensic analysis by a textile expert with the Tulsa, OK, PD fail to match the fibers with the FBI fiber database, other research revealed the fibers do not have the characteristics of textile fibers. One example is that the fibers do not dissolve in any of the common laboratory chemicals generally used to dissolve material in preparation for chemical analysis!






Harriet Bishop, President, TXLDA

Austin, TX

Morgellons Patient, President of Texas Lyme Disease Association.

Topic: "Staying Positive to Cope with Morgellons"

Summary: Harriett Bishop, current President of the Texas Lyme Disease Association spoke of living with Morgellons. She discussed her own illness and the major impact on her life. As she learned to live with the illness, she became a survivor with a message! Her emphasis on spirituality and a positive attitude was moving and inspirational. Her example and message should be guidelines for life for anyone with a chronic disease!





David Gibbs, MS, CDRP Austin, TX

Social Security Specialist, Disability Claims Professionals of Texas

Experienced and successful disability representation for Morgellons and Lyme disease.

Mr. Gibbs will be available to discuss issues related to the disability process.

Summary: Mr. Gibbs reviewed the process of applying for disability with Social Security, including some of the difficulties and challenges of the process. He encouraged anyone beginning the application process to seek professional help to maximize their chances of a speedy and positive outcome.






Elizabeth Rasmussen, Ph.D.

Laramie, WY

Doctorate in Clinical Psychology, Author of "Debunking DOP", Post-graduate training in microbiology and immunology, Board of Directors, Laramie Advisory Commission on Disability.

Summary: a video presentation by Dr. Elizabeth Rasmussen was shown. Unfortunately, due to health issues, Dr. Rasmussen was unable to attend in person. Dr. Rasmussen's presentation revealed some of her findings about Dermatology research and training.






Mark Darrah

Morgellons Research Director, Stone Brook University.

Topic: Research Overview

Summary: Mark Darrah presented some of his research including a number of Scanning Electron Microscopy images as well as high resolution light camera images. I believe many Morgellons patients will appreciate his images as in some instances they will see examples similar to those they've viewed with their home microscopes, but with awesome detail and clarity. Mr. Darrah’s main research interest is the “goo” of Morgellons lesions. This almost glue-like exudate from open Morgellons lesions seems to have qualities very different from the normal weeping secretions from skin abrasions. Mark believes understanding of this material will be vital to understanding the disease process.





SPECIAL MUSICAL GUESTS

Cliff Mikelson

Singer, Songwriter





Lee Mounger

Bass, Fiddle





FEE

A tax deductible contribution of $25.00 is requested to help cover costs but is not required. We want everyone to have the opportunity to attend. Any proceeds from this event will be used to further education and research.

Checks or money orders made payable to: "The Charles E. Holman Foundation"

Mail registration form along with your tax deductible contribution (if applicable) to:

The Charles E. Holman Foundation

P.O. Box 1109

Lone Star, Texas 75668

A confirmation of your registration will be mailed, faxed or emailed to you depending upon your preference. Questions If you have any questions regarding this event, please send an email to:

info@thecehf.org

We are excited with the announcement of this up-coming event and look forward to seeing you all there!