The Cindy Casey Story

My Success Story

Many of you have followed my battle with Morgellons thanks to my dear husband, Chas, who documented our experiences when I was not able. Now that I am so much better I hope to pick up on my diary where we left off. I'm glad that Chas took all the pictures as they serve as reminder to me of how thankful I am to be feeling so much better. For almost two years I was covered in lesions and so miserable I couldn't do anything but lay on the couch and cry. I will soon be posting more recent pictures so you all can see my improvement and know that you can and will get better. My skin has improved 90% and I feel like I'm getting my life back. When I first started treatment in July of 2004, I was so discouraged as my skin actually got worse instead of better. As treatment continued, I knew the day I had finally turned the corner. I had at least come to a point where this nightmare was at a manageable and tolerable point. My treatment protocols included many different antibiotics, antifungals and what seemed to help me the most was when I added Ivermectin to my regimen. Now I am down to only about 10 small sores which are easy to manage. I still produce plenty of "fibers" from my lesions and all my body fluids but I rarely experience the severe itching and creepy-crawly feelings that I once had.

I am so thankful to all of you who have reached out to me during those days. It was hearing from you that gave me the courage to fight this disease and to fight for the recognition and research we all deserve. I will be forever grateful to Ginger Savely who helped me through the hard times when the doctors and hospital I thought so much of let me down. My sincere thanks goes out to all of you in the MS-ICU at California Pacific Medical Center in San Francisco, who knew that even though I'm a little crazy.... I certainly couldn't make this up. I am thankful for the researchers that have stepped up to the plate to recognize and research Morgellons. Most of all, I thank my wonderful husband for never giving up and never giving in.

Chas and I will continue to fight this battle until this disease is understood and all patients are treated with the dignity and respect they deserve

Cindy Casey, RN
44 yo female
Sausalito, CA – North East, TX


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