By: Cindy Casey Holman, RNAugust 17, 2011
It was exactly 4 years ago today when the CEHF held a rally at the CDC. I remember the heat that day even though Kelly Pickens had kindly brought us misters to help keep us cool. I remember the sweat pouring down my face and my drenched hair as I gave the talk that thanked the CDC for the announcement that they were going to investigate Morgellons. I remember seeing my awesome husband in the crowd as I spoke and he was wiping tears from his eyes. Part of my speech thanked him for loving me and for standing by me through all of this. He made the statement that day that he had made several times before: “I will get Morgellons recognized in my lifetime or I will have died trying.”
We held that rally on August 17, 2007 and I will never forget it. We were optimistic and pumped up by the power of the people who joined us there that day. That night we watched it air on TV on the local 10 o’clock news. I wish I had the link to that video. We stayed in Georgia for my birthday on the 20th and then drove back to Texas. We used to sing together on road trips and that trip Charles wanted to sing “Swing Low Sweet Chariot”. So that’s what we sang off and on from Mississippi to Baton Rouge. Then only 20 days after that rally at the CDC, on Sept. 6, 2007, I lost my dear husband to a sudden massive heart attack. He actually died trying to get Morgellons recognized.
I’m really glad we put out the effort to hold that rally. It wasn’t easy…the road trip in the hot summer. My Morgellons was flaring up like fire so I did a lot of whining. It was a milestone in this journey that I will never forget; a milestone that was near the end of a race for Charles. I miss him every day but today I miss him a lot as I remember his determination and courage in the Morgellons fight. He fought for this cause when I could do nothing but cry.
Thank you my dear sweet Charles for giving me the courage and the confidence to go ahead and fight for what I know is right. Thank you for convincing me that I had to “pull myself up by my bootstraps” and do everything in my power for the sake of recognition and research. Thank you everyone who made that day at the CDC one we will always look back on as a milestone in this journey.
About a year or so after that was when Dr. Michelle Pearson, the head of the investigation at the CDC, stopped responding to my emails. And still today, 4 long years later, we’ve heard nothing from the CDC about the results of their investigation on Morgellons.