The CEHF wishes to congratulate Dr. Peter Mayne, Dermatologist of Laurieton Australia for his recent presentation on Morgellons Disease at a Cardiff University Dermatology Conference. His presentation was well received by his peers. We applaud Dr. Mayne for looking closely at the evidence and for his willingness to speak out publicly to dispel the knee-jerk Delusions of Parasitosis prior to thoroughly examine the skin with 100X light microscopy combined with a full medical work-up. Dr. Mayne’s presentation is the first known Derm in the world to stand up and step out of the psycho-cutaneous folklore that has long plagued the field of dermatology. Visit www.petermayne.com for more information.
We are grateful to Ginger Savely, DNP for a talk on Morgellons Disease given in October 2011 at the National Conference of the College of Nurse Practitioners. Our thanks go out to Kathy White, MS and the Greater Kansas City Area LDA for representing the CEHF and Morgellons Disease at several medical conferences in the Missouri-Kansas area. Thank you, Dr. Amelia Withington, for distributing information from the CEHF on Morgellons at the LymeDiseaseAssociation.org National Conference in Philadelphia, PA. And, thank you to anyone I may have forgotten to mention.
ILADS Conference 2011
Late October marked the 12th Annual 2011 ILADS (International Lyme and Associated Diseases Society) held in beautiful Toronto, Ontario, Canada. The meeting was a huge success as evidenced by participation of over 400 medical professionals from all over the world. The conference included presentations by a variety of medical and scientific experts. An Advocacy meeting brought together members of advocacy groups from across the U.S. and Canada and the evening networking events provided opportunities for advocacy groups, presenters and attendees to share ideas and contact information.
The Neuro-Psychiatric breakout session, moderated by Dr. Robert Bransfield was followed by a lively discussion on multiple neuro-psych topics followed the formal presentations. Dr. Raphael Stricker gave a presentation on the “Safety and Efficacy of Prolonged IV Antibiotic Therapy”.
In the Clinical Excellence Breakout session, Marianne Middelveen, Microbiologist (CEHF Scientific Advisory Board) gave a comprehensive yet medically concerning overview of the deficiency in reporting of Lyme Disease cases across Canada. Several other Canadian presenters provided interesting research data on a variety of veterinary related topics such as prevalence of Lyme Disease in canine and avian species. The Canadian presentations and lively discussions with Canadian attendees brought to light the many flaws in their socialized health care system. A seriously sad situation exists for Canadians who suffer from tick borne illness. The lack of recognition or reporting criteria and the complete lack of access to treatment leaves a dangerous gap in the management of infectious disease.
The Clinical Excellence Session in the Royal York Fairmont’s British Columbia Room hosted a presentation on Morgellons Disease. The work of Ginger Savely, DNP on the Topic of Morgellons was presented by colleague Cindy Casey, RN, Director, The Charles E. Holman Foundation (CEHF) “I was pretty nervous as I had never spoke at a physician conference before” Casey stated, “but the turnout was good and all of the Doctors were very supportive. Many of them had several Morgellons patients in their practice already”, Casey continued, “and they had actually examined their patient’s skin with 100X light dermoscopy, unlike the specialty of Dermatology whose reliance upon ancient medical folklore, has prohibited a skin examination with lighted microscopy for fear of feeding into their patient’s ‘delusion’ and ‘prolonging their office visit’. To this day, the ridiculous ‘match box sign’ is alive and well in dermatology and is utilized as diagnostic criteria for delusional diagnoses. All the while, dermatology literature ponders potential reasons for their Morgellons patients becoming agitated, unruly and disruptive at their Dermatology appointments. Go figure. The Doctors at the ILADS meeting were interested in learning more about the complex and distinct manifestations of Morgellons Disease.
The camaraderie, intellectual exchange and participation was inspirational to all who attended. This is a group of medical professionals who listen to their patients, look at the evidence that is available to them and titrate treatment options according to patient outcomes instead of titrating to parameters and limits outlined by insurance companies and stakeholders with no medical experience whatsoever. More information about the incredible 2011 ILADS Conference in Toronto is available on their website at www.ILADS.org.
The “Physician’s Round Table” Conference at the Tampa Marriott Westshore is coming up January 26th, 27th and 28th. The CEHF is one of the many exhibitors and will sponsor a Morgellons educational booth in the foyer. A live demonstration of visualizing Morgellons filaments and particles within and beneath the stratus stenosum and stemming from basal epithelial layers of skin using the ProScope HR dermatoscope will be the focus of our display. If you plan to attend, be sure to drop by our booth for some astonishing demonstrations. For more information on this event, visit the website at: www.peerobservationsmagazine.com
Our motto for this exhibit is “JUST LOOK” and it is part of our campaign designed to encourage physicians to LOOK and LISTEN to their patients when they come to them complaining of the symptoms of Morgellons Disease. The CEHF contends that this could be most “rapport enhancing” dermatological intervention available to date. These simple non-invasive interventions will prove to be therapeutic for the “physician-patient relationship” and “development of trust”, two criteria currently deemed important in some of the current Dermatology literature. The CEHF contends as well that a thorough skin exam with 100 X lighted microscopy is effective methodology for improving your patient’s behavioral issues. MOST IMPORTANTLY….we contend that this type of examination will often improve your patient’s outcome as well as prevent a wrongful delusional diagnosis and the life-long dangerous consequences this wrongful “delusional” label provides to thousands of unsuspecting victims of Dermatology’s folklore.