Morgellons Lived Experience Project
The Morgellons Lived Experience Project is bringing new attention to the patient voice. Led by anthropologist Christine Daley and a team of public health researchers at Lehigh University, the project explores Morgellons through in-depth interviews with more than 70 patients, physicians, and scientists.
Drawing from these firsthand accounts, the team has been working on a book that captures both the medical and human perspectives of Morgellons disease. Excitingly, the book proposal has been accepted and is now undergoing peer review.
Learn more about the project here: Morgellons Lived Experience Project on Facebook.