New to Morgellons? Start Your Journey Here...
WELCOME! THANK YOU FOR VISITING WITH THE CHARLES E. HOLMAN MORGELLONS DISEASE FOUNDATION.
We are sorry that you or someone you know may be dealing with symptoms related to the condition known as Morgellons disease (MD). Morgellons is a terrible disease that we know all too well. The lack of support and confusion about this illness especially within the medical community only makes things more difficult for us all. This brief introduction was made to assist as you explore our website. We have provided links to make it easier on your journey to become educated on Morgellons medical-scientific facts, not the hype or false speculation scatter throughout the Internet
THE CHARLES E. HOLMAN ORGANIZATION IS MAKING PROGRESS IN SOLVING THE MORGELLONS MYSTERY.
Currently, there exist neither federal grants nor private funding sources to support research for this disease. Our foundation is the singularly recognized authority on Morgellons and stands alone in funding scientific research of this condition. Our dedicated volunteers also act as advocates in education and patient outreach.
RANDY WYMORE, PHD, THE DIRECTOR OF THE CENTER FOR THE INVESTIGATION OF MORGELLONS DISEASE LOCATED AT OKLAHOMA STATE UNIVERSITY-CENTER FOR HEALTH SCIENCES IN TULSA, BEGAN RESEARCHING MD IN EARNEST IN 2005.
In 2011, a collaboration of microbiologist Marianne Middelveen and Raphael Stricker revealed a connection between Morgellons disease and a similar infection in cattle. Findings published in Jan 2013 showed DNA confirmation of a spirochete bacterium, Borrelia, in skin specimens of Morgellons disease patients. The peer-reviewed publications on this developing research are on PubMed and Medscape. However, we have made them easily available on our Research page to freely download and print. Below are the most recent, which might be helpful in understanding the current direction of research as well as the basis many medical care providers use in their medical management.
BASIC BEGINNINGS TO GET “IN THE KNOW” QUICKER:
- Just the Basics: Suggestions, Remedies & Helpful Hints for Morgellons Disease
- Morgellons disease: Analysis of a population with clinically confirmed microscopic subcutaneous fibers of unknown etiology.
- Letter to Physicians by Prof. Randy S. Wymore, PhD.
- Morgellons Disease: Diagnostic Testing
- Resources/Helpful Hints for Morgellons Disease Patients
- The CEHF Blog-Talk Radio Program
(Archived shows about 20 mins each)
IMPORTANT RESEARCH TO READ AND SHARE:
- Nov 4, 2011: Filament formation associated with spirochetal infection: a comparative approach to Morgellons disease
- May 15, 2012: Morgellons Disease: A Chemical and Light Microscopic Study
- Jan 8, 2013: Characterization and evolution of dermal filaments from patients with Morgellons disease
- Feb 12, 2015: Exploring the association between Morgellons disease and Lyme disease: identification of Borrelia burgdorferi in Morgellons disease patients
RESOURCES TO DEPEND ON:
The CEHMDF feels that we can battle Morgellons and best serve patients by providing scientifically based research. We do our best to keep current information on this website as well as our Facebook page.
The Center for the Investigation of Morgellons Disease (CIMD) at Oklahoma State University Center for Health Sciences
The CIMD at OSU-CHS in Tulsa maintains a confidential voluntary patient directory and we encourage registering with them at your earliest time. Maintaining such a database is important for understanding the epidemiological aspects as well as the rising number of cases.
A word of caution: It is important to realize there is no cure or specific treatment for Morgellons Disease known at this time. Please be cautious of “snake oil type” treatments and charlatans who are trying to make a quick dollar off another’s suffering, misery, and desperation.
MORGELLONS "FRIENDLY" PHYSICIANS
Morgellons is a multi-system disease, much more than just a skin condition. Patients have also reported experiencing various neurological issues, visual disturbance, and GI problems, as well as other health infirmities. It is a very real, physiological illness, and we stress the importance of seeking medical care.
To date, Morgellons is not recognized by many of those in the mainstream medical community. It is important that you try to find a compassionate medical care provider who can monitor your physical condition to evaluate and treat any symptoms that may develop. Finding a doctor can be a challenge because many medical providers at this time are not aware of Morgellons or erroneously believe it is not a physical affliction. Some consider it psychological in origin, despite sound physical evidence to the contrary. Education and a better understanding by medical providers everywhere will happen as on-going research reveals more and more.
Lyme Specialists have offered medical management to MD patients. This group of specialists understands the bacteria, Borrelia, and has experience necessary to manage this serious spirochetal bacterium as well as any possible co-infections.
You can check out referral resources at:
- Lyme Disease Association
- International Lyme and Associated Diseases Society
- Tick Borne Disease Alliance
- Local/State Lyme support groups
Currently there are no specific tests to diagnose Morgellons. Ultimately, a Morgellons diagnosis is a clinical diagnosis to be made by a qualified physician or other healthcare provider, based on symptoms and patient history, with test results used as tools to aid in the diagnosis.
The most distinguishing characteristic of Morgellons are the fibers/filaments in the skin. These fibers can best be visualized with a 60X lighted hand-held microscope. These can be affordably purchased on the Internet & in some local stores for about $12.00 (example is the Radio Shack Model: MM-100 Catalog #: 63-1313). The CEHMDF has a similar scopes available for $8.00 on our merchandise page.
Each spring we have an Annual Medical-Scientific Conference on Morgellons Disease, Searching for the Uncommon Thread, in Austin, TX. Details about the 2-day conference will be on our website and Facebook page. Although this is a medical conference, everyone is invited and encouraged to attend.
Anyone with the disease or supporting someone with it certainly will gain tremendous insight and better understanding by attending the conference. We hope you will consider joining us in Austin and look forward to meeting you.
We hope this message has given you a place to start and resources that you will find useful. As you explore our site, remember to check back often for new additions and updates. Keep “In the Know” because knowledge is your best friend.
Please feel free to email us for further assistance.
- Cindy Casey Holman, RN
- Charles E. Holman Morgellons Disease Foundation