The Charles E. Holman Morgellons Disease Foundation

Blog & News

Advocating for Change: A Day on Capitol Hill for Lyme Disease Awareness

March 8, 2026

On February 18, 2026, I joined more than 500 advocates from across the country for a national virtual advocacy day focused on increasing federal support for Lyme and other tick-borne diseases.

Morgellons Lived Experience Project Update

February 8, 2026

The Charles E. Holman Morgellons Disease Foundation continues its collaboration with anthropologist Chris Daley and students at Lehigh University on the Morgellons Lived Experience Project, a book based on nearly 100 interviews with patients, families, clinicians, and researchers.

Persistent Borrelia Infection in Chronic Lyme Disease: A Review of the Medical Literature

February 6, 2026

A powerful new review paper authored by Raphael Stricker, MD, Melissa Fesler, DNP and Lorraine Johnson in the journal Advances in Infectious Diseases titled Persistent Borrelia Infection in Chronic Lyme Disease: A Review of the Medical Literature.

Deb Corrigan, Cindy Casey-Holman and Samantha Rice pose with poster.

CEHF Attends ILADS 2025 as OSU Researcher Presents New Morgellons Findings

October 19, 2025

The Charles E. Holman Morgellons Disease Foundation (CEHF) attended the 2025 ILADS (International Lyme and Associated Diseases Society) Annual Conference at the Grand Hyatt in San Antonio, Texas.

Ginger Savely, DNP to Present on Morgellons in Fort Lauderdale

October 3, 2025

We’re excited to share that Ginger Savely, DNP, will be presenting on the topic of Morgellons disease at an upcoming medical conference this November in Fort Lauderdale, Florida.

Morgellons Lived Experience Project

October 1, 2025

Anthropologist Christine Daley and her team of public health researchers at Lehigh University have taken interest in Morgellons and the Lived Experience as described by patient interviews.

Morgellons Research is Ongoing at Oklahoma State University

September 25, 2025

Samantha Rice, under direction of Randy Wymore, PhD, stays busy in the lab at the Center for Investigation of Morgellons at Oklahoma State University’s Center for Health Sciences in Tulsa, OK.

Still Here, Still Dedicated: Progress in Morgellons Research

September 13, 2025

We remain just as dedicated as ever to Morgellons research, recognition, and education. Although the past few years have brought challenges — from the pandemic to health and family losses among our board — our daily work has continued. Patients continue reaching out for guidance, and several important projects have been unfolding behind the scenes.

Toronto Star: Patients with mysterious skin fibres have long been called delusional. A Canadian researcher wants to change that.

March 27, 2025

It begins with the sensation, head to toe, of ants crawling on his skin, followed weeks later by a sudden outburst of lesions across the body. Then, the fibres – red, black, white, sometimes, even a bright blue or purple metallic shade – start protruding from the wounds.

The Lyme Controversy

July 10, 2023

The Quiet Epidemic just dropped on Amazon Prime, Apple TV, and Vimeo. This riveting documentary takes viewers on a journey through the history of Lyme disease and shares how effective diagnosis and treatments have been stonewalled by the scientific community, the American healthcare system, and even the federal government.

Morgellons and Brain Fog

March 18, 2023

You just walked into the kitchen but can’t remember what you needed here. Or maybe the words you need in a meaningful conversation are at the tip of your tongue, but you can’t quite place them. While this is an occasional annoyance at best for most people, forgetfulness is an everyday struggle for Morgellons patients. Patients frequently complain about being unable to concentrate on simple tasks or remember important details to the extent that their job performance and home life are severely impacted.

Why Does Morgellons Disease Make Me So Tired?

January 2, 2023

You’re trying to work, but the work isn’t happening. Concentration flits in and out, allowing you to only make mild headway on what you’re supposed to be doing. The dishes and the laundry are stacking up. You haven’t the energy to shower. You’re so tired. All the time. And you’ve been tired for weeks, maybe even months.

Understanding Morgellons Arthritis

December 8, 2022

Morgellons disease’s hallmark symptoms include widespread slow-healing open sores and unusual-colored filaments found in the skin or protruding from lesions. However, the disease attacks a number of body systems, leading to an array of other difficult symptoms including overwhelming fatigue, muscle aches, heart problems, digestive issues, brain fog, and joint pain.

Finding A Doctor Can Be A Challenge For Morgellons Patients

November 2, 2022

Morgellons disease has enough in common with Lyme disease that finding a knowledgeable doctor can be difficult. But the cost of not finding one is even greater.