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How Do You Get Morgellons Disease?

The mainstream media and the medical community at large view Morgellons as a delusional disorder. But research over the last decade has found that Morgellons disease symptoms are a manifestation of an underlying bacterial infection. The culprit, spirochetal bacteria in the Borellia genus, are known to cause disease in other mammals and are spread by blacklegged ticks. 

 

If you have Morgellons symptoms, you may have suffered for years before finding a name for your illness. The Charles E. Holman Morgellons Disease Foundation is here to help answer your questions surrounding Morgellons disease and raise awareness for healing. 

 

Through the remainder of this article, we’ll introduce how Morgellons symptoms spread through tick bites and how animals that contract the symptoms are cured. Then we’ll examine why people aren’t treated with known cures for the same symptoms, often being mislabeled with mental disorders instead.

How do you get a spirochetal infection? 

Understanding Morgellons disease requires knowing how ticks spread bacteria. Spirochetal bacteria, named for their spiral-shaped appearance, are responsible for many diseases. Borrelia, a group of spirochetes, causes infectious diseases like Morgellons, relapsing fever, and Lyme disease and is primarily spread through blacklegged tick bites.  

Ticks and disease

Ticks use unique sensory systems to detect the breath, body odor, body heat, and movement vibrations of animals. These adaptations allow the blacklegged tick to identify frequently used paths. 

 

Along these paths, ticks climb to the tips of shrubs and grasses and wait for their next hosts with arms outstretched—a behavior called questing. When an animal brushes by, the tick climbs aboard. 

 

Once on the host, ticks spend ten minutes to two hours looking for the right place to begin eating. Usually, ticks prefer moist, protected areas on the body that won’t be easily noticed, like the groin or ears. 

 

Once a tick has found the perfect spot to eat, it grasps the host’s skin and cuts through the surface layers. Next, the tick inserts a feeding tube and secretes a cement-like substance to hold it in place while it dines. 

 

While feeding, ticks excrete anesthetic laced saliva so that the host won’t be bothered by the feeding parasite. If the tick finds a well-sheltered spot, it can go unnoticed for its entire stay. 

 

Ticks usually suck blood for several days. Once they’ve had their fill, they’ll fall off. The host may be none the wiser. 

 

Problem is, ticks spread disease while they feed. If a host animal has a blood-borne illness, the tick ingests those germs during its meal. When the tick finds a new host, it then spreads those germs and illnesses through its saliva.

 

Blacklegged ticks seek a new host with every life stage. And since these ticks can live for three years, a single tick can spread disease through any number of animals—humans included.  

Symptoms of tick-borne illness

In many cases, people who contract tick-borne illnesses may never know that a tick bit them, and symptoms of a tick bite may take days or weeks to appear. 

 

If you like to go for adventures in tick-infested areas, take precautions to protect yourself from tick bites.

 

If you suspect you’ve experienced a tick bite, here are symptoms to watch for: 

 

  • Fever and chills 
  • Muscle aches and joint pain
  • Extreme fatigue 
  • Erythema migrans rash—“bullseye” rash

 

Generally speaking, an erythema migrans rash is a tell-tale sign of a Lyme infection. About 30% to 80% of infected people develop a rash that starts at the site of a tick bite. The rash can take anywhere from a few days to an entire month to show up after the bite, so you wouldn’t know that a tick bit you until after the tick is long gone. 

 

An example of an erythema migrans rash

“Bullseye rashes,” or Erythema rashes, get their nickname because they gradually grow in a bullseye shape over several days and may be as large as 12 inches across. As the rash develops, it also clears, leaving a red mark in the center surrounded by a red rim along the outermost edge with clear skin in the middle. The rash is warm to the touch but isn’t itchy or painful. 

 

Evidence suggests that Morgellons patients suffer from a form of chronic, systemic Lyme disease. When a person goes untreated for a tick bite leading to Lyme disease, the spirochetal infection can spread, causing symptoms in several different body systems and even leaving microscopic fibrous growths embedded in the skin and causing itchiness. Research also suggests that humans aren’t the only mammals to react to a Borrelia infection with lesions and fiber growth. 

Borellia infections in other animals

As seen in Morgellons disease, extraordinary keratin fibers and ulcerating lesions aren’t unique to humans. These are well-known symptoms of spirochetal infections in domestic dogs and livestock. 

Lyme disease in dogs

A dog with a tick between its toes

Our canine companions are susceptible to tick-borne illnesses too. Dogs with tick-borne diseases like canine Lyme experience many of the same symptoms as humans, including: 

 

  • General malaise
  • Fever
  • Swollen lymph nodes
  • Joint pain
  • Swollen connective tissues

 

However, furry friends can’t speak up and tell us that they aren’t feeling well, so initial symptoms may go unnoticed by owners for weeks or even months. Once noticeable symptoms like lameness become apparent, the underlying spirochetal infection has spread throughout the dog’s body. 

 

In 2016, researchers collected skin samples from nine dogs experiencing ulcerating lesions with unusual filament growth—strikingly similar to Morgellons disease. The dogs in question also had a history of tick exposure. 

 

Skin samples were examined under a microscope and used for culture growth. Researchers visually confirmed spirochetes under magnification, and the cultures grew a species of Borrelia bacteria. Researchers did not find the presence of Borrelia species in the asymptomatic dogs that were used as controls. That hints that the bacteria isn’t found in healthy canines and may be responsible for illness in the afflicted dogs. 

 

Through serological (blood plasma and antibody) testing, researchers found that most of the dogs had antibodies against Borrelia bacteria—which indicated that the animals’ immune systems in the study were fighting an ongoing infection. Again the control animals did not test positive for Borrelia antibodies and did not have an immunological history of the disease. 

 

In this study, owners of the infected dogs tried several different treatments to heal their pets’ sores and alleviate symptoms. In almost every case, topical treatments failed. Antibiotic therapies that included doxycycline were successful. 

Bovine digital dermatitis 

Since 1994, bovine digital dermatitis (BDD) has been a widespread and well-documented illness affecting dairy cattle in the midwestern United States. Characterized by open sores and long filaments, this disease can cause lameness, weight loss, a decrease in milk production, and even death in dairy cattle. The condition is highly contagious and can quickly spread through an entire herd, with devastating financial impacts for farmers. 

 

Because of BDD’s financial strain on the entire dairy industry, researchers quickly identified spirochetal infections as a primary cause. Over the last 20 years, antibiotic sprays and foot washes have been widely accepted treatments for infected animals. 

 

And yet antibiotic treatment for people with Morgellons still isn’t widely accepted. If you suffer from Morgellons disease symptoms and have been unable to find help, locate a doctor who understands now.

Your donation saves lives

Canine companions receive antibiotic treatment when a spirochetal infection causes open sores, general malaise, and unusual filament growths. 

 

Dairy cattle receive antibiotic treatment when a spirochetal infection causes open sores, filament growth, and decreased milk production. 

Yet when a person experiences a spirochetal infection with open sores, filament growth, and debilitating systemic symptoms, many experts call them “delusional.” 

Help us make Morgellons a disease acknowledged by practitioners as the debilitating disease it is. The harm and emotional turmoil that comes from misdiagnosis is too massive to adequately explain.

 

Help spread awareness and change the dogma surrounding Morgellons disease through grassroots efforts. Your donations help fund the research for practical solutions that can provide relief to those suffering from Morgellons disease.

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Current Morgellons Disease Research: Understanding the Methods Used

Recent Morgellons disease research has found ample evidence that a patient’s symptoms stem from the body’s reaction to a bacterial infection. The research supports that patients’ pain has a pathogenic cause and doesn’t stem from a neurological disorder, as some claim. 

Morgellons disease is characterized by colored filaments embedded in the skin and protruding from painful skin lesions. Morgellons patients also suffer from other seemingly inexplicable symptoms that severely impact their quality of life. 

Without an apparent cause, the mystery behind Morgellons has led many medical professionals to prescribe antipsychotics to treat neurologic symptoms. Patients walk away with no relief for the physical symptoms and some even question their own sanity. 

In all actuality, the culprit behind Morgellons disease appears to be caused by spirochetal bacteria front the Borrelia genus known to be spread by ticks and associated with Lymes disease. Although Borrelia spirochetes are detected across the board in Morgellons skin tissue, other pathogens may also play a role. 

Scientists continue to use these steps to refine our understanding of this enigmatic disease.

How do researchers identify infecting bacteria? 

When presented with an unknown bacterium, microbiologists work to isolate infection-causing bacteria. This helps them better understand the species with which they are dealing. Morgellons researchers have followed this same process to identify the spirochetes ravaging Morgellons patients’ lives. 

Standing on their own, any individual bacterial test may not offer conclusive evidence that Morgellons patients suffer from a spirochetal infection. However, by running a combination of these tests on multiple patients, researchers have concluded that species related to the  Borrelia genus are some of the pathogens responsible for Morgellons disease. 

Here’s a rundown of laboratory experiments used to identify spirochetal infection in Morgellons patients. 

Microscopic staining

In this Morgellon’s study, scientists took skin samples from participating patients. When examined under a microscope, it’s difficult to differentiate between skin cells and invasive bacteria. To help the bacteria visibly stand out from the surrounding cells, microbiologists use special staining techniques to dye the bacterial cells a different color. 

Once bacteria are stained, scientists can study their physical characteristics under different types of microscopes to determine to which group the unknown bacteria belong. Bacteria are initially classed or organized based on their physical structure under one of five groups of bacterial “shapes.” These shapes include rod (bacilli), round (cocci), spiral (spirilla), comma (vibrios), and corkscrew (spirochetes). 

The bacteria infecting Morgellons patients have a twisted corkscrew shape and are classified as spirochetal bacteria.

Going Deeper with SEM & TEM

An example of a transmission electron microscope.

After classifying the shape, researchers enlist SEM or scanning electron microscopy to go deeper. Electron microscopes help them describe bacterial cell structure, measure size, and study changes in the bacteria’s physical appearance. This kind of microscopy gives researchers a much better view of specimens than light microscopy alone. SEM helps researchers confirm the physical shape of infecting bacteria and gather essential details about their physical qualities. 

Beyond SEM, researchers turn to transmission electron microscopy (TEM) for a high-resolution image of internal structures. Using TEM, researchers can see details as tiny as individual atoms. 

SEM and TEM help researchers understand the physical qualities and structures of the organisms they study. Their biggest drawback is that neither can provide any information about bacterial evolutionary development or offer any genetic identification. 

After using these physical classification techniques, researchers work next to identify the bacteria using DNA testing.

PCR or Polymerase Chain Reaction testing

An example of the machine used for PCR genetic testing.

DNA holds instructions and information inside all living organisms. Polymerase chain reaction tests, or PCR tests, are a fast and accurate approach to diagnosing infectious diseases using DNA collected from disease-causing agents. The machines used in PCR testing can identify the pathogen DNA mixed in a sample.

Researchers collect samples of blood, tissues, mucus, and saliva from patients to run a PCR test.

Each sample contains the patient’s DNA and DNA from the infecting bacteria. Researchers place samples taken from the patient in a particular machine and add an enzyme called polymerase. Within an hour, the polymerase enzyme causes the cells in the sample to clone the genetic material billions of times—including the bacterial DNA.

The PCR machines then sequence or decode the DNA strands to identify the infecting bacteria. 

Serological reactivity & antigen testing

Collecting a blood sample for testing.

Even after identifying the infecting bacteria, researchers are still unsure of the source. That’s why they turn to serological reactivity and antigen testing next. This kind of testing scans a person’s immune system for antibodies related to specific diseases. For instance, the spirochete that causes Morgellons or Lyme disease triggers certain antibodies. 

In serological testing for Morgellons disease, scientists collect blood from a patient. The serum, or liquid portion of the blood, is separated from the blood cells. Then researchers add an agent derived from Borrelia spirochetes to the serum. If the serum reacts to the agent, the researcher can infer that previous patient exposure to the bacteria caused an immune response. 

While this form of testing can be helpful in identifying illness, Lyme disease testing uses lab-grown bacterial strains that aren’t as genetically diverse as naturally occurring strains. The lack of natural diversity leads to both false positives and false negatives. That’s exactly the kind of thing that can reinforce some doctors’ thinking that Morgellons doesn’t stem from bacterial infection at all. 

So researchers have to take it even further for better understanding.  

Inoculations & culture growth

Cell growth culture made from an inoculation.

We’re used to hearing the term “inoculation” used in relation to vaccination. But in microbiology, inoculation means adding microorganisms into a culture, or prepared petri dish, to be grown and multiplied. In this Morgellons disease study, researchers added skin samples to a petri dish that contained everything the bacteria needed to grow and reproduce. 

When Borrelia species grew in a petri dish from a Morgellons patient skin sample, researchers knew that there were living bacteria in the sample they took from the patient and that they were dealing with an ongoing infection. 

Researchers can also use the bacteria grown through inoculations for further testing without collecting more samples from the patient.

Control groups 

In a number of the studies presented, the researchers also tested for Borrelia species in control groups or volunteers with no symptoms or history of Morgellons or Lyme disease. If members of the control group host the same spirochetes, the researchers can presume that the bacteria may not have a role in these infections. 

However, Borrelia species were absent in the control groups of volunteers and unique to the Morgellons patients across nearly all experimental procedures. This reinforces Borrelia spirochetes as the culprit behind Morgellons disease.

Treating the infection

Researchers have isolated and identified Borrelia spirochetes in multiple Morgellons patient studies. Because the disease appears to be caused by an underlying spirochetal infection, using antipsychotics to treat Morgellon symptoms is a misguided approach that can cause psychological and physical harm. 

The most effective way yet discovered to treat an underlying bacterial infection in Morgellons Patients is an antibiotic regimen. Morgellons patients lucky enough to find a doctor who understands Morgellons is an ongoing bacterial infection have already experienced reduced symptoms through antibiotic treatment.

And that’s a relief for more people being called delusional when dealing with a pathogenic disease. 

Donations are needed

Despite ongoing research proving otherwise, the CDC still doesn’t officially recognize the underlying cause of Morgellons disease. The symptoms of Morgellons disease are debilitating for patients and their families. Many patients must fight for care simply because this disease is considered a delusional disease without a physiological cause. 

Through research sponsored by the Charles E. Holman Foundation, we give patients the answers they need and discover better treatments. Experiments like the ones outlined here are costly and time-consuming—and more research is required. 

Your donation today will help fund future research for treatments and cures. You will also help us spread awareness and provide resources to help support those suffering from Morgellons disease. 

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Is Morgellons Disease Real or Imagined? Discover the Truth

The internet is rife with opinions and theories about Morgellons disease and its causes. Most related Google searches pull up articles claiming that Morgellons Disease is a mental disorder. Pundits on open forums make outlandish claims for dangerous treatments. While many sources are quick to cite fallacies and assumptions, let’s look at the facts.

The Charles E. Holman Morgellons Disease Foundation funds research to increase our scientific understanding of Morgellons’ underlying cause, diagnosis, and treatment. Our foundation is a grassroots effort to spread factual awareness and promote and fund further research. 

This article will demystify Morgellons Disease by gathering and breaking down supportive findings.

Is Morgellons Disease Real or Imaginary?

Morgellons disease doesn’t exist in medical books. The CDC doesn’t even recognize Morgellons disease as an actual illness, instead referring to it as an “unexplained dermatopathy” and dismissing most telltale fibers underneath the skin as cotton fibers. 

Contrary to popular medical sites and even the CDC, the Charles E. Holman Morgellons Disease Foundation has found scientific evidence that supports the existence of Morgellons disease:

  • Reproducible findings of bacterial infection 
  • Evidence of tick-born transmission
  • Proof embedded filaments are biological—not synthetic or from textiles 
  • Case studies in favor of antibiotic treatment  

While symptom intensity varies from patient to patient, our research supports claims that common symptoms can be explained through replicable testing and observation. 

General Symptoms of Morgellons Disease

Morgellons patients suffer from a wide-ranging and often debilitating variety of symptoms, making a diagnosis challenging to pin down. However, patients typically suffer from: 

  • Slow-healing skin lesions
  • Inexplicable fibers in the skin
  • Overwhelming fatigue 
  • Gastrointestinal issues 
  • Heavy brain fog 
  • Itching, stinging skin 
  • Muscle aches and joint pain 
  • Dental deterioration 
  • Sleep disorders 
  • Other psychiatric manifestations 

Understanding dermatological symptoms 

Ulcerating skin lesions (open sores) are often one of the most outwardly visible symptoms a Morgellons patient experiences. Open sores may cover a patient’s face, shoulders, trunk, arms, or legs. The sores are painful, slow to heal, and usually have multicolored fibers or filaments embedded in or protruding from the skin. These are typically only visible using magnification.

Morgellons Disease Lesions on Wrist

Morgellons Disease Lesions on Wrist

Morgellons patients are frequently misdiagnosed as having delusions of parasitosis or infestation, meaning they have imagined a parasite living under their skin. And their sores are often described as self-inflicted—an assumption the patient must be clawing at their flesh to remove imaginary creatures crawling inside.

If you or someone you love suffers from Morgellons, you know this form of self-harm couldn’t be farther from the truth. 

Recent studies show that Morgellons patients aren’t delusional about their infestation. Something really lives deep inside their tissues, and doctors misdiagnosing Morgellons as a mental disorder can be extremely harmful.

Spirochetes: The Underlying Cause of Morgellons Disease

In several studies, Borrelia burgdorferi spirochetes, a species of bacteria, have been found living in samples taken from skin, cerebrospinal fluid, and vaginal excretions of Morgellons patients. 

Morgellons Disease Fibers Magnified Specimen

Morgellons Disease Fibers Magnified Specimen

Open skin sores are a manifestation of the body’s battle against a spirochetal infection—not endless scratching. 

That constant tingly, creepy-crawling feeling Morgellons patients experience isn’t from the bacteria itself but instead a reaction to the infection. 

Deep within the skin’s layers, some cells make the keratin and collagen fibers that help give skin support and structure. With Morgellons patients, these cells kick into overdrive, making massive protein strands or fibers. Morgellons patients can feel these fibers growing in their skin.

That sensation alone would drive anyone a little crazy—and it does lead many in the medical community to label Morgellons patients as delusional.                                                           

Spread of Infection  

Supporting research suggests that a bacterial infection spread by ticks may cause Morgellons disease. When biting humans, infected blacklegged ticks can spread Borrelia burgdorferi spirochetes. Such a bite can trigger a cascade of symptoms, usually resulting in Lyme disease.

 

After being infected, patients exhibit early signs of Morgellons including: 

  • Fever and chills
  • Headache 
  • Fatigue
  • Muscle and joint pain 
  • Swollen lymph nodes
  • Bullseye rash—Erythema margins rash

While the red “bullseye” rash is a strong early indicator of infection, not everyone bitten by infected ticks experiences it, making diagnosis difficult. 

When doctors suspect Lyme disease, they order blood tests to determine if the patient has antibodies present for Borrelia burgdorferi bacteria. If tests come back positive, patients begin treatment with a course of antibiotics for 3-4 weeks. 

The bacterial infection that causes Lyme and Morgellons diseases is spread through bites from infected ticks.

The bacteria that causes Lyme Disease is hard to detect, rendering many tests inaccurate. False positives and false negatives for Lyme disease — and therefore Morgellons disease — are more frequent than they should be.

People falling under a false-negative typically don’t receive the antibiotic treatment they need, leaving their symptoms to fester and flare—sometimes for months or even years. Patients with Lyme are often misdiagnosed as having a different disease such as fibromyalgia, chronic fatigue syndrome, multiple sclerosis, lupus, psychiatric disorders, or others.

How is Lyme Disease related to Morgellons Disease?

Through research, we’ve unearthed strong evidence to support Morgellons disease as a manifestation of chronic, untreated Lyme disease. 

When well-meaning doctors misdiagnose patients with a false negative test for Lyme, patients fail to receive proper treatment. As you can imagine, misdiagnosis can lead to cascading symptoms that make matters worse and play with the emotions and mental health of patients who know something more is wrong. As far as test results may say, there’s nothing wrong with them. 

But getting a professional to believe they have a misdiagnosed or undiagnosed medical problem can be difficult. After all, Morgellons is misunderstood at best, leaving many doctors to treat the symptoms as if they stem from other problems, even mental disorders.

The dangers of misdiagnosis

The medical community often tries to lump undiagnosed Morgellons patients with other skin or chronic fatigue disorders. But when many patients don’t “fit” any known physiological diagnosis, they get tossed into the psychiatric realm, diagnosed with delusional disorders, and given antipsychotics.  

This approach ignores the underlying bacterial infection and symptoms usually worsen. Simultaneously, patients may even start questioning themselves when experts misdiagnose them, creating mental disorders not initially present after first infection. Yes, doctors can literally cause mental disorders in Morgellons patients through misdiagnosis.

Physicians should keep in mind that underlying infections can manifest as mental illnesses.

In a dermatological journal in 2018, researchers called out this problem that too many Morgellons patients recognize too well. 

“It is easier to declare mental illness the exclusive etiologic cause, thus blaming the patient, when confronted with perplexing symptoms that the practitioner cannot explain,” researchers stated in their study. “However, it is irresponsible to label a patient delusional without an appropriate psychiatric evaluation, and if mental illness is present a physician should bear in mind that an underlying infectious process can cause a pathological response resulting in mental illness.”

A misdiagnosed Morgellons patient’s life deteriorates the longer they go without help. Many patients will even withdraw from loved ones and activities they once enjoyed. 

When a person’s body declines, their mental health often follows. When left untreated, symptoms worsen, and quality of life plummets. Many patients lose hope with no end in sight for their suffering. 

Such long-term agony sadly makes Morgellons disease patients more likely than the average person to commit suicide.

More Research is Needed to Understand Morgellons

You shouldn’t question whether Morgellons is “real.” To those who suffer and their loved ones who watch helplessly, it is deeply palpable and consistently annoying or even debilitating. 

Morgellons disease is not imaginary; it is misunderstood. 

Over the last two decades, researchers have made breakthroughs in understanding its underlying cause and viable treatments. 

Still, more research is needed to fully understand Morgellons disease and educate the doctors who misdiagnose patients so those suffering from it will receive the treatments they deserve. 

Any donation you make will help the Charles E. Holman Morgellons Disease Foundation pave the way for greater awareness of this disease among the medical community and push for better treatment. 

Together, we can find answers to this misunderstood illness, providing treatment and hope for those afflicted by Morgellons disease. 

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Pi Ware speaks at 2020 Lyme Disease March

Pi Ware, director of documentary film “Skin Deep: The Battle Over Morgellons” speaks at 2020 Lyme Disease March

Pi Ware’s speech from the 2020 Online Lyme Disease March–why Morgellons Disease Awareness & Activism is important to the Lyme Disease Community and TIPS & TRICKS on how to advocate online through blogging and linking!

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LATEST RESEARCH

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